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Once upon a time, there lived several happy and dedicated families in different countries around the world.

They did not know each other, but they were somewhat similar. They shared the love, passion and concern for their children. And the kids that these parents have were kind of similar. They were sweet, cute and lovable little kids.

When the kids went to school, more concern took over parents. Although the kids were attending normal school, playing with all other children, they were a little slow.

The parent never gave up in the search for the answer to their concern. And one day they got the news. Children have a rare autosomal recessive Lysosomal Storage Disorder (LSD) called Aspartylglucosaminuria, the diseased that has no cure and not much information available about it.

When the initial shock wore off, the parents got together to find the cure for the kids.
This is the blog of their endeavor and journey.